Links
clinicaltrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.
www.clinicaltrials.gov
Domestic and International Spinal Muscular Atrophy Organizations
- SMA Foundation, USA (www.smafoundation.org)
- Cure SMA (www.curesma.org)
- FightSMA, USA (www.fightsma.org)
- The Muscular Dystrophy Association (MDA), USA (www.mda.org)
- Jennifer Trust for SMA, United Kingdom (www.jtsma.org.uk)
- The SMA Trust, United Kingdom (www.smatrust.org)
- Association Française contre les Myopathies (AFM), France (www.afm-telethon.fr/#tab=recherche)
- TREAT-NMD, Europe (www.treat-nmd.eu)
- EURORDIS, Europe (www.eurordis.org)
- Associazone Per Lo Studio Delle Atrofie Muscolari Spinali Infantili (ASAMSI), Italy (www.asamsi.org)
- The research against SMA, Italy (www.ricercasma.it/index.php)
- Unione Italiana lotta alla Distrofia Muscolare, Italy (www.uildm.org)
- SMA Europe (www.sma-europe.eu)
- Deutsche Muskelstiftung (German Muscle Foundation), Germany (www.muskelstiftung.de)
- Fundación Atrofia Muscular Espinal, Spain (www.fundame.net)
- Children with SMA (CSMA), Ukraine (www.csma.org.ua)
- SMA Grubu, Turkey (www.smagrubu.net/sma/index.php)
- Asociatia Werdnig Hoffman (AWH), Romania (www.werdnighoffman.ro)
- Initiative – Forschung und Therapie fuer SMA Deutsche Gesellschaft fuer Muskelkranke (DGM), Germany (www.initiative-sma.de)
- Kolpingova rodina Smečno, Czech Republic (www.dumrodin.cz)
- Famiglie SMA, Italy (www.famigliesma.org)
- Familias AME, Argentina (www.fameargentina.com.ar)
- Families of SMA, Canada (www.curesma.ca/)
- Families of SMA Charitable Trust - Hong Kong, China (www.fsma.org.hk)
- Familes of SMA, New Zealand (www.smanz.org)
- Familias y Amigos de la Atrofia Muscular Espinal, Venezuela (www.fame-fsma.org)
- Families of SMA, Israel (www.fsmail.co.il)
- SMA Korea, South Korea (www.koreasma.com)
- Korean Organization for Rare Diseases, South Korea (www.kord.or.kr)
- Korean Society of Pulmonary Rehabilitation, South Korea (www.breatheasyclub.com)