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Domestic and International Spinal Muscular Atrophy Organizations

  1. SMA Foundation, USA (www.smafoundation.org)
  2. Cure SMA (www.curesma.org)
  3. FightSMA, USA (www.fightsma.org)
  4. The Muscular Dystrophy Association (MDA), USA (www.mda.org)
  5. Jennifer Trust for SMA, United Kingdom (www.jtsma.org.uk)
  6. The SMA Trust, United Kingdom (www.smatrust.org)
  7. Association Française contre les Myopathies (AFM), France (www.afm-telethon.fr/#tab=recherche)
  8. TREAT-NMD, Europe (www.treat-nmd.eu)
  9. EURORDIS, Europe (www.eurordis.org)
  10. Associazone Per Lo Studio Delle Atrofie Muscolari Spinali Infantili (ASAMSI), Italy (www.asamsi.org)
  11. The research against SMA, Italy (www.ricercasma.it/index.php)
  12. Unione Italiana lotta alla Distrofia Muscolare, Italy (www.uildm.org)
  13. SMA Europe (www.sma-europe.eu)
  14. Deutsche Muskelstiftung (German Muscle Foundation), Germany (www.muskelstiftung.de)
  15. Fundación Atrofia Muscular Espinal, Spain (www.fundame.net)
  16. Children with SMA (CSMA), Ukraine (www.csma.org.ua)
  17. SMA Grubu, Turkey (www.smagrubu.net/sma/index.php)
  18. Asociatia Werdnig Hoffman (AWH), Romania (www.werdnighoffman.ro)
  19. Initiative – Forschung und Therapie fuer SMA Deutsche Gesellschaft fuer Muskelkranke (DGM), Germany (www.initiative-sma.de)
  20. Kolpingova rodina Smečno, Czech Republic (www.dumrodin.cz)
  21. Famiglie SMA, Italy (www.famigliesma.org)
  22. Familias AME, Argentina (www.fameargentina.com.ar)
  23. Families of SMA, Canada (www.curesma.ca/)
  24. Families of SMA Charitable Trust - Hong Kong, China (www.fsma.org.hk)
  25. Familes of SMA, New Zealand (www.smanz.org)
  26. Familias y Amigos de la Atrofia Muscular Espinal, Venezuela (www.fame-fsma.org)
  27. Families of SMA, Israel (www.fsmail.co.il)
  28. SMA Korea, South Korea (www.koreasma.com)
  29. Korean Organization for Rare Diseases, South Korea (www.kord.or.kr)
  30. Korean Society of Pulmonary Rehabilitation, South Korea (www.breatheasyclub.com)